Epilepsy South Africa is the only national organisations focused on the needs and ambitions of persons with and affected by epilepsy in South Africa.
The organisation was established in 1967 as the South African National Epilepsy League (SANEL) and changed its name to Epilepsy South Africa in 2002, celebrating its 50th anniversary in 2017.
The National Office is located in Cape Town with six Branches nationally:
• Western Cape based in Wetton, Cape Town with a satellite office in Wellington;
• South Cape/Karoo in Knysna;
• Eastern Cape based in East London with outreach programmes in Mthatha and Port Elizabeth;
• Gauteng based in Geduld, Springs with a satellite office in Braamfontein, Johannesburg;
• Free State & North West based in Parys; and
• Mpumalanga & Limpopo based in Dullstroom (Mpumalanga) and Elandsdoorn (Limpopo) with several satellite offices.
The work of Epilepsy South Africa is focused on the rights of persons with disabilities, particularly epilepsy as defined in the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) and the South African White Paper on the Rights of Persons with Disabilities (WPRPD).
• Advocacy development, self-representation (epilepsy ambassadors) and lobbying including training and youth development through the Nicholas Project;
• Awareness and education about epilepsy and disability (events, campaigns, media liaison, social media and an electronic library);
• Social development (counseling, psycho-social support services, community development, support groups, residential care, home-based care day care services);
• Economic development (open labour market, protective employment workshops and small business/entrepreneurial development);
• Skills development including learnerships and training programmes, as well as the Epilepsy SA Educational Trust providing bursaries to students with epilepsy for tertiary education.